Does anyone have some words of encouragement when your sister is stricken with ALS and can no longer speak walk , even stand eat write or function. She just lays in the bed with a look of fright and wants to die. She hasn't eatten food in weeks. I'm praying that God takes her now. I just don't know what to do for her.
hlkdde, Sorry I haven't written sooner but I had carpul tunnel surgery on BOTH wrists and I still have 2 bandages and braces on. I'll write more later when it is not so hard to type. You are experiening a horrific situation. You are watching a loved one suffer and can do little to alleviate it. I also prayed that my mom die at the end because I felt so so helpless to change her condition. Get support for yourself - either family or friends or ALS support groups. Support groups saved me sanity, helpd me realize that I was doing everything I could to help her, relieved alot of my feelings of helpless, fear,guilt and anger. I worked in a hospital for years and saw many ALS patients. Their families felt exactly like you do. Please please reach out to an ALS support group. My prayers and good thoughts are with you. cg33.
I'm sorry to hear about this. I looked at the date on your message and noticed it is a long time ago. I hope you read this. My mom has MSA, which models ALS in many ways. She is now bed bound, can hardly talk, feed herself or anything else. Mostly what you need to do for your sister is treat her as much like a normal person as you can. Talk to her, tell her about your day. I know its hard to get them to connect sometimes, but its worth it.
If she wants to die, that's ok. Talk to her about it, hold her hand while she comes to this conclusion. I hope all is well with you, and if your sister is now gone, I hope it was peaceful.
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